More of the same

The nurses tell us that Evalyn is doing better today.  I guess we should take the experts opinion, but to us it looks like she is pretty much the same.  I suppose that's the point.  Yesterday Evalyn's condition was deteriorating and now it has stabilized.  We still need to give her a little time for the medication to work.

This is still hard to watch.  She requires sedation so she is doesn't move much or open her eyes, unless the sedation is wearing off and then she kind of jerks sporadically. The medication also causes swelling, the puffiness might be nice if it was fat.

Evalyn will finish this round of meds tonight and get another scan tomorrow to see if the hole has closed.  If the hole has not closed sufficiently she will require surgery.  The surgery would be performed at UCLA so she would need to be flown down and back a few days later via helicopter.

The prospects of open heart surgery is terrifying.  Not only are we terrified of the short term health implications, we also worry about the little things like Evalyn having a scar that her identical twin doesn't.

Sorry if I'm being too candid here; I want to be open and also keep these entries as a journal.  But on a brighter note Lillian continues to do well.  She seemed very relaxed tonight.  She was alert and opened her eyes for the longest I've seen.  She also loves her pacifier as you can see.

Hoping to bring you better news tomorrow.